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Neuromuscular and Genetic Disorders

Our Specialized Care

The Neuromuscular and Genetic Disorders Program at Children’s Specialized Hospital is a multidisciplinary rehabilitation program designed to treat children ages birth to 21 years with complex needs and conditions. Our highly specialized program provides individualized care for children who are ventilator dependent or walk with assistive devices.

Our Individualized Approach

special needs child in wheelchair with doctorUpon admission into the Neuromuscular and Genetic Disorders Program, patients are provided a comprehensive team evaluation, diagnostic assessment and a personalized rehabilitation plan that can include:

  • Aquatic therapy
  • Physical therapy
  • Occupational therapy
  • Recreational and Child Life therapy
  • Speech therapy
  • Psychology
  • Functional electronic stimulation with cycle ergometry

Throughout the child’s stay in the Neuromuscular and Genetic Disorders Program, continuous assessments and goals are created to provide each patient with the tools to improve their mobility, functionality, independence in self-care, and utilization of assistive devices and adaptive technology. Each patient works to reach personal goals and development milestones.

The multidisciplinary approach to therapy allows patients to progress in ways such as:

  • Walking as appropriate without assistive devices
  • Improving general functions
  • Utilizing muscular power and cognitive skills to advance self-care
  • Enhancing skills and mobility
  • Increasing potential of feeding by mouth
  • Utilizing adaptive technology and assistive mobility to increase individual potential

baby with nurseThe highly specialized inpatient program provides comprehensive follow-up that can include referrals to proper medical specialists and outpatient therapy.

Our comprehensive inpatient program treats conditions such as:

  • Guillain-Barre Syndrome
  • Various neuropathies
  • Myopathies
  • Muscular dystrophy
  • Complex genetic disorders
  • Spinal muscular atrophy
  • Diseases of neuromuscular junction

Patient Stories

  • “Children’s Specialized Hospital has provided us with such excellent care. I couldn’t ask for a better team for Aiden.”

    Aiden
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Patient Stories

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