Down Syndrome Advocacy
Children's Specialized Hospital
Down Syndrome Center of Excellence
Children’s Specialized Hospital prioritizes the well-being of all people. Through various programs and resources available to our patients and families, we’re committed to supporting a community where everyone can thrive.
Advocacy
Equity
- Screening for social drivers of health and follow up support
- LAMP medical-legal partnership
- Food insecurity support
- Respite
- Secondary Medicaid
- Caregiver programs (ex PPP)
- Case management through insurance
- Performance developmental disability services
Safety
- Community Safety education
- Elopement screening and resources
- CSH Online Safety Center
- Home nursing referrals
- Center for Independent Living
Transition
- Decision-making options
- Transition readiness screenings
- Health passport for coordination to adult care
- Supplemental Security Income (SSI) application
- Developmental Disabilities Services application
- Information about post-secondary education programs, supported employment
- Center for Independent Living
Inclusion
- Educational rights education
- Recreation
- Representation
Caregiver Education and Support
- Connection with national organizations (National Down Syndrome Congress, National Down Syndrome Society, Down Syndrome Diagnosis Network, Down Syndrome Education International, Global)
- Connection with local organizations (Gigi's in Hillsborough, DS of Southern NJ, DS of Northern NJ, Club DREAMS)
- Educational services support (SPAN)
- American Academy of Pediatrics (AAP) Guidelines/Adult Guidelines
