Chronic Health Conditions Research

The Research Center’s studies in chronic health conditions focus on the management and treatment of various conditions ranging from diabetes, and Attention-Deficit/Hyperactivity Disorder (ADHD), to the impacts of Neonatal Abstinence Syndrome (NAS) on early development.

Our Current Studies

Return to School (RTS): A Mixed Methods Study to Understand Community Integration for Pediatric Populations with Disabilities - We are currently seeking parents and former patients over age 18 who are interested in sharing their experiences with returning to school after the hospital for several focus groups. If you or your child was hospitalized at CSH between November 2009 and December 2019 and returned to school in New Jersey, please contact the research team: Alexa Bartalotta at 973-315-7562 or ABartalotta@kesslerfoundation.org or Annie Kutlik at AKutlik@childrens-specialized.org. Also, we are seeking the experiences of Children’s Specialized Hospital clinicians in a separate group – please contact us for more information.

Evaluating a Multidisciplinary Chronic Illness Management Program for Children and Adolescents: This study investigates the effectiveness of the Chronic Illness Management Program at Children’s Specialized Hospital, specifically among patients with diabetes. Learn more about the Chronic Illness Management Program. Learn more about the Chronic Illness Management Program at Children’s Specialized Hospital.

Validating the University of Alabama Behavioral Scale (UAB) in the Chronic Pain Program for Children and Adolescents: To validate the UAB scale by conducting an observational assessment of chronic pain and behavioral correlates in a pediatric population admitted to an inpatient rehabilitation program for chronic pain. This scale has been used in adults with chronic pain; however, our aim is to validate the scale for use with children and adolescents. Learn more about Center for Pediatric Chronic Pain Management at Children's Specialized Hospital.

Remediation of Pediatric Attentional Deficits using the APT-3 (ages 10-17 years):
Children with a diagnosis of ADHD/ADD or history of Concussion. Study is examining whether an attention program called the Attention Process Training-3 (APT-3) can improve the attention of school-aged children. Study involves completing paper-and-pencil measures, questionnaires and a computer-based training program. For more information, please contact Clarice Bourland at973-323-3678 or cbourland@kesslerfoundation.org.

More Studies in Chronic Health Conditions

Inpatient Sleep Patterns and Engagement in Rehabilitation Therapy - This pilot study seeks to understand the sleep patterns of a pediatric inpatient rehabilitation population, and how sleep patterns may affect the patient’s alertness, engagement in therapies, and cooperation.

Neurocognitive Correlates of Action Control in Attention/Deficit-Hyperactivity Disorder - This study aims to characterize the behavioral correlates and neural correlates of action control and the effects of methylphenidate in patients with ADHD.

Understanding neonatal abstinence syndrome (NAS) - The goal of this study is to describe infant withdrawal outcomes from an NAS treatment program that uses a combination of pharmacotherapy and environmental supports.

Infant Toddler Clinical Tracks - A qualitative study of the Infant/Toddler Clinical Tracks to investigate the process and rationale behind targeted rehabilitation approaches.

Neonatal Abstinence Syndrome Follow Up - This study aims to assess the developmental outcomes in patients with a NAS diagnosis in the perinatal period, who are being followed through the High Risk Neonatal Follow Up Clinic.

Validation of Infant-Toddler Parent Report Outcome Measure (PROM) - This study aims to validate the CSH-created PROM for measuring parent knowledge and comfort related to care of infants and toddlers with complex needs.

Sertraline Pediatric Registry for the Evaluation of Safety (SPRITES) - A non-interventional, longitudinal, cohort study to evaluate the effects of long-term sertraline (Zoloft) treatment in children and adolescents .

Assuring Patient-centered Literacy Promotion for Underserved Children (A PLUS) to Promote School Readiness - This is a 4 year project supported by the Robert Wood Johnson Foundation that develops and tests a video and text messaging intervention to enhance Reach Out and Read and encourage shared reading between parents and young children.

Ready and Healthy for Kindergarten - A family literacy program that uses discussion of health topics to introduce early literacy and language skills among dual language learners.

Adverse childhood experiences and child development - This study uses data from the Fragile Families study to gain insight into relationships between early adversity and child development.

Interpretation and translation services in pediatrics - This study examines access issues related to limited English proficiency and current practices related to language access.

Our Recent Publications

Marchetta, C. M., Maruyama, R., Galifi, L., & O'Reilly, C. Evaluating a Multidisciplinary Inpatient Program for Youth with Type 1 Diabetes Mellitus. Pediatric Diabetes. In Press

Shahidullah, Jeffrey, et al. 'Implementation of Developmental Screening by Childcare Providers.' Infants & Young Children 33.1 (2020): 21-34.

Larson, J. J., Graham, D. L., Singer, L. T., Beckwith, A. M., Terplan, M., Davis, J. M., ... & Bada, H. S. (2019). Cognitive and behavioral impact on children exposed to opioids during pregnancy. Pediatrics, 144(2), e20190514.

For a full list of publications, please click here.

Program Highlight: Chronic Illness Management

The Chronic Illness Management Program at Children's Specialized Hospital is a comprehensive inpatient program for children with chronic, life-altering conditions who have demonstrated the need for additional support to better manage their condition. The program provides the child and family with a structured, comprehensive service plan to address their medical, nutritional, psychological, and communication needs to enhance the child's total well-being.

Learn more about this program.

Patient Stories

  • We saw that email and immediately reached out to the contact and set up a virtual evaluation.

    Emily
    Read More
  • “You cannot believe the truly amazing work these doctors, nurses, therapists and social workers do, and the miracles they help kids perform on a daily basis. They are the unsung heroes of Chase's journey.”

    Chase Maverick
    Read More
  • “At the start of his care, Orian appeared clumsy (tripping, falling, and bumping into objects within his environments),” adds Meredith. “That all resolved by the time of his discharge.”

    Orian
    Read More

Patient Stories

  • Watch Testimonial
  • Watch Testimonial
  • Watch Testimonial