Support Groups & Programs

Support for Patients and Families

As an advocate for patients with renal failure and those who support them, the Renal and Pancreas Transplant Division offer an extensive outreach program. Designed to meet a variety of specific needs, these groups provide ongoing education, counseling and support for patients of every age. This is a free public service. Please call in advance to confirm the schedule and your attendance.

Children’s Kidney Center Teen Night

Activities and outings are planned 4 times per year for patients ages 13 – 21. Teen night offers a space for patients and parents to connect outside of the medical environment and engage on a more personal level. Activities are catered to interests of the participants and the time of year. For more information about upcoming Teen Nights, please contact Lorena Zamarelli at 973-322-6769.

Parent 2 Parent Support Network

Discovering that your child has a chronic illness can be a difficult experience. The Children’s Kidney Center is beginning a program to connect parents of newly diagnosed Chronic Kidney Disease/Pre-Transplant patients with parents who have been through similar situations. Parent mentors will be available to offer emotional support, answer questions, and share resources. If you are interested in becoming a parent mentor, please contact Lorena Zamarelli at 973-322-6769.

Resources

The following organizations and associated web sites provide general information, frequently asked questions and patient testimonials about kidney transplantation:

  • optn.transplant.hrsa.gov – The Organ Procurement and Transplantation Network (OPTN): The unified transplant network established by the United States Congress under the National Organ Transplant Act (NOTA) of 1984
  • www.unos.org –United Network for Organ Sharing (UNOS): The organization contracted to administer the OPTN. UNOS has also developed a website specifically for patients and families at www.transplantliving.org
  • www.njsharingnetwork.org – The Sharing Network: The non-profit, federally certified organ procurement organization (OPO) An OPO is a program that acquires and coordinates placement of donated organs for patients on national transplant waiting lists.
  • www.kidneyfund.org – American Kidney Fund (AKF)
  • www.a-s-t.org – American Society of Transplantation
  • www.kidney.org – National Kidney Foundation
Saint Barnabas Medical Center
94 Old Short Hills Road
Livingston, NJ 07039
(973) 322-5000
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Monmouth Medical Center
300 Second Avenue
Long Branch, NJ 07740
(732) 222-5200
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The Unterberg Children's Hospital at Monmouth Medical Center
300 Second Avenue
Long Branch, NJ 07740
(732) 923-7250
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Monmouth Medical Center Southern Campus
600 River Avenue
Lakewood, NJ 08701
(732) 363-1900
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Clara Maass Medical Center
1 Clara Maass Drive
Belleville, NJ 07109
(973) 450-2000
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Community Medical Center
99 Highway 37 West
Toms River, NJ 08755
(732) 557-8000
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Newark Beth Israel Medical Center
201 Lyons Avenue at Osborne Terrace
Newark, NJ 07112
(973) 926-7000
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Children's Hospital of New Jersey at Newark Beth Israel Medical Center
201 Lyons Avenue at Osborne Terrace
Newark, NJ 07112
(973) 926-7000
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Jersey City Medical Center
355 Grand Street
Jersey City, NJ 07302
(201) 915-2000
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The Bristol-Myers Squibb Children's Hospital at RWJUH
200 Somerset Street
New Brunswick, NJ 08901
(732) 828-3000
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RWJ University Hospital Hamilton
1 Hamilton Health Place
Hamilton, NJ 08690
(609) 586-7900
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RWJ University Hospital New Brunswick
1 Robert Wood Johnson Place
New Brunswick, NJ 08901
(732) 828-3000
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RWJ University Hospital Rahway
865 Stone Street
Rahway, NJ 07065
(732) 381-4200
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RWJ University Hospital Somerset
110 Rehill Avenue
Somerville, NJ 08876
(908) 685-2200
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