Foundation Board and Staff

Foundation Board of Trustees


  • Leslie Logan Taylor, Chair
  • Mark Montenero, Vice Chair

  • Matthew Skurbe, Treasurer

  • Michael V. Miller, Secretary


  • Julie Alcorn
  • Virginia Alling
  • Bill Arnold
  • Vincent Baricaua
  • Anna Bauder
  • Nicholas A. Boccella
  • George Destafney
  • Mairead Goetz
  • Michael Lewis, PhD
  • Angela Martin-Moushon
  • Matthew McDonald, III M.D.
  • Edward J. McKenna, Jr., Esq.
  • Joseph Mindak
  • Jeff Minick
  • Dr. Colin O’Reilly
  • James Pirot
  • Karen Reif
  • Bonnie Rodriguez
  • Pinky Shah
  • Anita Siegel, Esq.
  • Fred Tewell
  • Victor Viscomi
  • Dr. Edward J. Zampella

Emeritus Board Members

  • Paul C. Bosland, Chairman Emeritus
  • Alexander R. Giaquinto, Ph.D., Chariman Emeritus
  • Louis Parent, Emeritus Trustee

Honorary Trustees

  • Joseph Lamendola, Ph.D.
  • Frank Vuono

Legal Counsel

  • Phelan, Frantz & Ohlig, LLC

Foundation Staff

Foundation Newsletters

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Spring 2023 Issue

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Fall 2022 Issue

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Patient Stories

  • When Aiden Shanklin was 9 months old, his mother, Nicole, noticed that he wasn't developing like other children his age. He had very little head support, no trunk control, and when she would go to lift him it felt as if she were picking up a rag doll.

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  • “Joey has changed our lives forever,” said Robin. “I can’t imagine life without him.”

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  • Leah
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Patient Stories

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