Bennett Every Step Counts: Bennett’s Intensive Therapy Journey

“In our evaluation, it was abundantly clear how amazing these therapists are and how much effort and care they provide their patients."

Bennett has Prader-Willi Syndrome, a genetic syndrome that can cause low muscle tone. “We have been improving through physical and occupational therapy since birth. However, at about 2 years old, he began to plateau – on the verge of walking but unable to get past the cruising phase. When our early intervention physical therapist recommended Children’s Specialized Hospital’s Pediatric Intensive Physical and Occupational Therapy program, we jumped on the idea immediately,” highlighted Bennett’s mom, Dylan.

“In our evaluation, it was abundantly clear how amazing these therapists are and how much effort and care they provide their patients. But we quickly realized after beginning the intensive two months later that the compassion we saw from our evaluating team was only a small fraction of the unparalleled care we'd soon experience. From his 4 main therapists - Miss Heather, Erin, Molly and Jackie - to the substitutes who filled in when needed - Miss Madigan and Carrie - to all of the other wonderful therapists who said “HI!” or smiled or fake sneezed (at Bennett's request - especially Mr. Greg!), every single member of this team exceeded our expectations. They were all sweet, silly, patient and determined to see my son succeed.”

Bennett

“Not only did Bennett actually enjoy putting in the long and sometimes challenging work of the intensive, but he exceeded his goal of independently walking 10 feet by the end of the 4 weeks and presented gains in so many unexcepted ways. His speech and vocabulary skyrocketed, his posture and overall strength improved, and possibly most importantly, his confidence soared. This is partially due to seeing what he can achieve and partially due to the amazing team cheering him on at every turn,” exclaims Dylan.

“We cannot wait to get back into another intensive and achieve even more physical milestones with the help of this special team and highly recommend this program to any family exploring a high impact treatment for physical delays!”

Learn more about Children’s Specialized Hospital’s Intensive Physical and Occupational Therapy Program